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Start page
New to PROM
Preparing for a Preemie
Preparing for a Perinatal Loss
Pregnant After PROM
Stories
About The PROM Page

This is a copy of the (P)PROM Page, a new page is under construction. v2.1 /Inkan July 12, 2011



Warning: Undefined variable $hidetitle in /customers/d/6/5/inkan.se/httpd.www/prom/prom_header.php on line 153 Preparing for a Preemie

The first week: your baby

Evaluating and stabilizing
During your baby's first week in the NICU, the neonatal health care team evaluates and stabilizes your baby's condition, giving him or her the best chances for survival. The NICU team may take some or all of the following measures to help your baby during the first week.

  • Some NICUs put babies on IV antibiotics immediately as a precautionary measure until they receive results from bloodwork.

  • Depending on your baby's gestational age, he or she may be tested for various complications common in preemies. For example, your baby might have a head ultrasound to check for intraventricular hemorrhage and blood tests to check for infection and monitor bilirubin levels. Many hospitals will also test preemies' eyes. Your baby will have several tests over the course of his or her NICU stay.

  • If your baby has severe jaundice or an infection, he or she may receive a blood transfusion. Because transfusions are fairly common in the NICU, your neonatologist may discuss the possibility of transfusion with you during one of your pre-delivery meetings.

  • Your baby may receive a dose or course of surfactant in the first few hours after birth to help his or her lungs stay inflated and improve the effectiveness of the breathing treatments.

  • Your baby may receive medication to keep him or her sedated or immobile while on the ventilator. In addition, your baby might be given an analgesic (such as Fentanyl) for pain management.

Common PROM preemie complications
Remember that each baby's experience is different. Some PROM preemies will have none of these complications and will be discharged from the NICU relatively quickly, while others will have complications in addition to those listed and longer NICU stays.

  • One of the most common complications for PROM preemies is pulmonary hypoplasia (underdeveloped lungs). PROM preemies often have this condition because the lack of amniotic fluid limits the opportunities for the baby's lungs to expand fully, which is what stimulates lung development. If a baby is born with hypoplastic lungs, it will be difficult or even impossible for him or her to breathe normally.

  • PROM preemies may also experience orthopedic complications caused by not being able to move easily because of low amniotic fluid. For example, PROM babies may be born with a club foot, dislocated hips, or other contractures of limbs. Orthopedic complications are usually minor and correctable through surgical or physical therapy after your baby is discharged from the NICU.

Respiratory complications

  • Babies experience respiratory distress syndrome (RDS) when the air sacs in the lungs collapse between breaths as a result of insufficient surfactant in the lungs. Having to refill the air sacs with every breath means that the baby's lungs must work much harder than if he or she was producing enough surfactant naturally. RDS will improve with time, and is treated by administering surfactant and using breathing equipment. The majority of preemies born at 26 weeks gestation and earlier will have RDS. Steroid injections have been shown to reduce the incidence of RDS if given a minimum of 24 hours prior to delivery.

  • Apnea of prematurity is a pause in a preemie's breathing that lasts more than 20 seconds. Apnea will also improve as the part of the brain that regulates breathing has a chance to become more developed, usually within about 2 to 4 weeks of the baby's due date. Apnea can be treated with caffeine (IV or oral) or other medications, although mild cases may be treated simply with stimulation instead of medication. Most NICUs will not discharge a baby until several consecutive days without apneic episodes. A condition associated with apnea is bradycardia, which is when a baby's heart rate drops to less than 100 beats per minute (120 to 160 beats per minute is normal).

  • Chronic lung disease (CLD) -- also known as bronchopulmonary dysplasia (BPD)-- occurs when a baby's breathing equipment causes inflammation or damage to a baby's lungs. CLD/BPD is diagnosed by chest xray and is treated by slowly weaning the baby off respiratory machines, allowing the lungs to heal over a period of a few weeks or more. Although the lung tissue is chronically damaged, as the baby's lungs mature their total capacity can reach a point where the damaged area is of minor importance.

  • Patent ductus arteriosis (PDA) is a condition involving a blood vessel close to the heart which is open in the womb but usually closes within the first few days after birth. When the blood vessel does not close, it can strain the baby's lungs and cause breathing problems. PDA is diagnosed by xray or echocardiogram (ultrasound). PDA sometimes resolves without any medical intervention, but can be treated with medication or surgery.

Gastrointestinal complications

  • Necrotizing enterocolitis (NEC) affects the baby's intestinal lining. NEC is not common, but can be very serious and lead to apnea, and bradycardia, and respiratory problems. A NEC diagnosis is confirmed with xray. Treatment for NEC includes discontinuing oral feedings and administering antibiotics, but very serious cases may require surgery.

  • Reflux occurs after feeding, and causes food to come back up the esophagus. Signs of reflux include frequent vomiting, aspiration pneumonia (when food then gets inhaled into the lungs), apnea, bradycardia, and oxygen desaturation. Reflux can be diagnosed by a pH probe, a baruim swallow, or upper GI study. Although babies usually grow out of reflux, it can be treated by adjusting the amounts, positions, frequency, or thickness of feeding. In some cases, medications such as Reglan or Zantac can be helpful. Surgical treatment for reflux is rare.

Other complications

  • Intraventricular hemorrhage (IVH or bleeding in the brain) is diagnosed by a head ultrasound, usually within the first week after birth. IVH is fairly common in preemies weighing less than 1000 grams at birth, but less common in larger babies. This type of hemorrhage is classified by grades 1 through 4. Grades 1 or 2 IVH are considered mild and generally create little risk or complications. Risks increase for Grades 3 and 4. Steroid injections prior to delivery and receiving indomethacin immediately after delivery have been shown to reduce the incidence of IVH.

  • A baby's bilirubin levels generally rise after birth, then begin to gradually decrease after 5 to 7 days. Jaundice occurs when bilirubin levels accumulate in the liver faster than it can be broken down. Most preemies experience some degree of jaundice and are usually treated for a few days or more with "bili lights" or phototherapy. In severe cases of jaundice, the baby may require a blood transfusion.

  • Retinopathy of prematurity (ROP) occurs when changes in oxygen flow or other factors can cause abnormal blood vessels to grow and damage the retina. ROP is more common in preemies born before 28 weeks. About four to six weeks after delivery, an opthamologist will examine your baby's eyes for ROP. In about 90% of ROP cases, abnormal blood vessels will disappear without treatment within a few months past the baby's due date. More advanced cases will usually receive cryotherapy or laser therapy, or surgery.

Feeding issues
Babies born prior to 34 weeks gestation have not yet developed the ability to coordinate the reflexes to suck and swallow with breathing. For this reason, babies born prior to 34 weeks may need one of these interventions to help with feeding.

  • Total parenteral nutrition (TPN) bypasses the digestive system and goes directly into the baby's bloodstream through an IV or central line. TPN is often used for babies born at less than 34 weeks gestation and some neonatologists believe that introducing food to the esophagus too early will cause the baby to develop reflux.

  • Gavage feedings involve feeding your baby breast milk or formula through a tube that goes from his mouth or nose into his or her stomach.

  • Preemies frequently have trouble drinking from a nipple (breast or bottle) at first. If your baby is having trouble nursing, ask the lactation consultant whether a silicone nipple shield would help with nursing. The lactation consultant will be able to instruct you on using the nipple shield and where to find one.

Photographs
You may not feel like taking photos of your baby during this first week in the NICU, but the members of the PROM list encourage and recommend that you do so. You do not have to look at the photos until you are ready, but at least you will have them if you or your baby would like to see them later.

When you take photos, it is good idea to have some object next to your baby to give a sense of scale. If possible, try to take as many of the photos as possible without using a flash, as the flash causes disturbance to the babies in the room. Ask the health care team before you use the flash. If you feel that it would be too difficult for some people to see photos of your baby with all the tubes and wires, consider having the photos printed in black and white, taking some photos at a greater distance, or taking photos just of your baby's hand or foot in your hand. Also, plan to take photos of your baby's health care team to help your family remember them afterwards.

You may want to keep a disposable camera at your baby's bedside just in case you leave yours at home, or if the nurses want to take photos while you are away. If you and your partner or spouse feel uncomfortable taking the photos yourselves, ask the NICU nurses to take the photos for you. Some NICUs have digital cameras and will give you a disc of photos when you are discharged.

 

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Article by Jodi Donnelly, Mommy to Anthony PROM @ 16 weeks, born in 2004 @ 31.5 weeks, 41 days in NICU and now thriving
and Kay Squires, september 2005
Special thanks to Inkan, Jen, Jody, Lise, Sonya, Valerie, Beth and the members of the PROM list

© 1998-2024 Inkan, The PROM Page

 

 Preparing for a
 PROM Preemie
Preapring for a
  PROM Preemie
Advice
Meet your new
  health care team
Preparing for
  delivery

The first 48 hours

The first week:

 - Your baby

 - Taking care of
   Yourself

 - Your partner, older
   children, and others

Bonding with
  your baby

Loss in the NICU

Remember

Resources

Appendix A:
  Creating a Preemie
  Birth Plan

Show all