Preterm Premature Rupture Of Membranes

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Resources

Phone, in-person, or email support for parents expecting a PROM preemie

PROM list: Click here to join the PROM list so we can support you through your baby's NICU stay.
Listing of preemie online forums, mailing lists, chats:
http://www.preemiehelp.com/
http://www.prematurity.org/preemielists.html
http://preemie-l.org/
http://premature-infant.com/

Phone, in-person, or email support for parents experiencing a PROM or preemie loss

Share Pregnancy & Infant Loss Support
http://www.nationalshareoffice.com/
LAMBs (Loss of All in Multiple Birth Support)
http://www.public.iastate.edu/%7Ecjenks/lambs.html
Center for Loss in Multiple Birth (CLIMB) Inc.
http://www.climb-support.org/
Multiple Birth Association (Australia) Bereavement Support Group: http://www.amba.org.au/content/resources/bereavement/
LIMBO (Loss in Multiple Birth Outreach)
http://health.groups.yahoo.com/group/elimbo/

General information

March of Dimes Prematurity Website:
http://www.marchofdimes.com/prematurity/prematurity.asp

General preemie info:
http://www.pediatrics.wisc.edu/patientcare/preemies/

General information:
http://www.preemiecare.org/

General information:
http://www.spensershope.org/

Glossary of preemie terms:
http://www.preemieinfant.ca/links_glossary.cfm

Neonatology overview and resources:
http://www.neonatology.org/

Outcomes by gestational age:
http://www.geocities.com/Heartland/Acres/2077/table.html

Lung maturity general info:
http://www.wardelab.com/arc9.html

Lung maturity testing reliability:
http://parenting.ivillage.com/pregnancy/pthirdtri/0,,46lh,00.html

La Leche League/breastfeeding info:
http://www.lalecheleague.org/

Kangaroo care:
http://www.geocities.com/roopage/

Intraventricular hemorrhage:
http://www.emedicine.com/ped/topic2595.htm

Pediatric Adolescent Gastroesophageal Reflux Association
http://www.reflux.org/

Ronald McDonald Houses:
http://www.rmhc.com/rmhc/index/search_house.html

Synagis/RSV shot:
http://www.medimmune.com/products/synagis/index.asp

Baby Steps NICU journal:
http://www.perinatalweb.org/association/pub_preMatBabySteps.html

Maine Medical Center sample birthplan:
http://www.mmc.org/mmc_community/Birthplan.pdf

Support and coping

Storknet NICU support cubby:
http://www.storknet.com/cubbies/nicu/stories-christy.htm

Tips for new preemie parents:
http://members.aol.com/KBone91/tbone.html

Roles of NICU parents:
http://www.prematurity.org/roles.html

Helping parents survive:
http://www.prematurity.org/baby/rollercoaster-maroney.html

Inspirational preemie poems and stories:
http://www.kingfam.homestead.com/stories.html

Longterm effect of steroids:
http://www.nzherald.co.nz/index.cfm?ObjectID=10128177

Preemie Products

Prematurely yours (preemie products):
http://www.prematurelyyours.com/

Handmade preemie dolls:
http://www.preemiedolls.com/

Preemie clothes:
http://home.comcast.net/~preemieclothes/

Preemie clothes:
http://www.preemiedonna.com/

Preemie clothes:
http://www.preemie.com/

Books

Preemies
The Essential Guide for Parents of Premature Babies by Dana Wechsler Linden, Emma Trenti Paroli, and Mia Wechsler Doron, M.D.

Parenting Your Premature Baby and Child: The Emotional Journey
by Deborah L. Davis, Mara Tesler Stein

What to Do When Your Baby Is Premature:
A Parent's Handbook for Coping with High-Risk Pregnancy and Caring for the Preterm Infant by Joseph A. Garcia-Prats, Sharon Simmons Hornfischer

Caring for Your Premature Baby:
A Complete Resource for Parents by Alan H. Klein

Kangaroo Care:
The Best You Can Do to Help Your Preterm Infant by Susan Ludington-Hoe

The Preemie Parents' Companion:
The Essential Guide to Caring for Your Premature Baby in the Hospital, at Home, and Through the First Years by Susan L. Madden

Your Premature Baby and Child:
Helpful Answers and Advice for Parents by Dianne I. Maroney, Judy C. Bernbaum, Jessie Groothuis, Amy E. Tracy

The Premature Baby Book : Everything You Need to Know About Your Premature Baby from Birth to Age One
by William Sears

Living Miracles:
Stories of Hope from Parents of Premature Babies by Kimberly A. Powell (editor)

List of books for special needs children:
http://www.comeunity.com/dbooklist.html

Magazines

Preemie Magazine
http://www.preemiemagazine.com/

Emotional issues and loss

Postpartum depression:
http://www.postpartum.net

Multiplicity: The Special Challenges of Parenting Twins & More Loss, Prematurity and Special Needs: http://www.synspectrum.com/multiplicity.html

Next page, Appendix A: Creating a Birth Plan >>

Article by Jodi Donnelly, Mommy to Anthony PROM @ 16 weeks, born in 2004 @ 31.5 weeks, 41 days in NICU and now thriving
and Kay Squires, september 2005
Special thanks to Inkan, Jen, Jody, Lise, Sonya, Valerie, Beth and the members of the PROM list



		Preparing for a PROM Preemie

• Preapring for a
PROM Preemie

• Advice

• Meet your new
health care team

• Preparing for
delivery

• The first 48 hours

• The first week:

- Your baby

- Taking care of
Yourself

- Your partner, older
children, and others

• Bonding with
your baby

• Loss in the NICU

• Remember

• Resources

• Appendix A:
Creating a Preemie
Birth Plan

• Show all