My membrane ruptured at 29 weeks. I was
then hospitalized for 5 weeks, when they
induced labor. My baby was born at a
good weight but premature in every other
way. He was unable to nurse or void
wastes properly. He was sent by
ambulance to a larger teaching hospital
at 5 days of age. They were to test him
for Hirschsprung's disease, in which
individuals are born without nerves in
the lower intestine and rectum area. At
seven days he came home. By 1 monthe of
age my son had not gained any weight. on
April 2nd. he was again transferred by
ambuland, but this time on a repirator.
He was too weak to properly fight off
infection and had developed pneumonia.
After 5 weeks, he came home again.We
know now that he has a metabolic
disorder in which he burns up calories
too quickly. Breastmilk could not even
be used due to its not having enough
calories. His formula is 27 calories per
ounce. We then add corn starch to it.
Butter has been added to his food. Other
than being small my son is ok.
However, we are watching him very
closely.
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